What to do with your tax refund if you have a metabolic disorder

If you’re like most Americans, whether or not you have a metabolic disorder, you’re either spent Tuesday putting the finishing touches on your taxes, or waiting for your refund. For those of you lucky enough to be getting money back, we have some suggestions about what to do with your check. Save it for your 2019 deductible Every January, we hear from people with PKU and other metabolic disorders who struggle to find the money for formula or low-protein food because they...

Read more...

BUILD 20/20: The Lowest Phe GMP Medical Food Ever!

Last year we announced that Cambrooke had been acquired by Ajinomoto, a worldwide leader in amino acids, pharmaceuticals, and seasonings. We said we were excited to leverage Ajinomoto’s research and development strengths as we continue our mission at Cambrooke. Now, we are excited to announce that we have developed our first new PKU medical food since we joined Ajinomoto: BUILD 20/20, the lowest Phe GMP formula available. BUILD 20/20 contains only 20 mg Phe per 20 g PE serving. That’s an average...

Read more...

Getting enough sleep with PKU

  Spring: when the air gets warmer, and the days get longer, and the sun rises earlier –which makes it harder for a lot of people to get a good night’s sleep. Even if the sun doesn’t peek through your curtains at 6 am, if you have PKU, you may be more likely to have problems getting to sleep and staying asleep than your friends and family. A Dutch study found that 48% of men with PKU had symptoms of a sleep...

Read more...